Finding grace...

A writing hiatus of about three months now has left me with lots to ponder. Most of all, after the suicide of my beloved brother, I seek ways to honor his legacy. Knee-deep in his belongings (after a long red-tape tangle of bureacracy and the move of his lifetime of goods and hundreds of pieces of his artwork to a storage facility near my home), I sort carefully and cautiously. Yet, there are moments when I feel like I am throwing him away, casting his precious memories aside.

This is where I must find the grace to select the items that comfort me and offer the rest of his things to extended family and friends. His art, however, should be shared widely in my opinion as it speaks loudly of a lifetime of growth and raw emotion during a post-WWII era of enlightenment and change. The things we are finding are extraordinary, including photographs of his participation in the Selma to Montgomery, Alabama march in 1965 led by Dr. Martin Luther King alongside his vivid sketches and paintings that he produced for over 50 years. He did lead a colorful life, in more ways than one.

And there is my own battle with illness and trauma where I find myself returning to that dark hole known as post-traumatic stress disorder (PTSD). I've learned that I've carried PTSD signs and symptoms my whole life, most prounounced during my life-threatening battle with stage 4 cancer. In fact, psychiatrist and writer Mark Epstein writes in an article entitled The Trauma of Being Alive in The New York Times that there is also a human condition called "pre-traumatic stress syndrome."

"Trauma is not just the result of major disasters. It does not happen to only some people. An undercurrent of trauma runs through ordinary life, shot through as it is with the poignancy of impermanence. I like to say that if we are not suffering from post-traumatic stress disorder, we are suffering from pre-traumatic stress disorder. There is no way to be alive without being conscious of the potential for disaster. One way or another, death (and its cousins: old age, illness, accidents, separation and loss) hangs over all of us. Nobody is immune. Our world is unstable and unpredictable, and operates, to a great degree and despite incredible scientific advancement, outside our ability to control it." - Mark Epstein

So, I search for "the quality or state of being considerate or thoughtful" as Merriam-Webster offers as one definition of grace. And I try not to leave myself out of the benefits of that grace; to remember that it is a quality that I want and need to process yet another trauma in my life.

Once again, my legs were knocked out from under me on August 24, 2013. Three months later, it is time to accept grace into my life again and carry myself with the energy of my brother's soul. He is my greatest supporter and source of strength. He will carry me back to my work and my life. He will always be in my heart and his talents will be brought more to light through me and my writings and the accomplishments of the generations of family that are already springing forth.

Sane and Able?

Is it possible to renew one's life after personal tragedies hit the double digits? Yet again, while I try to cope with my varying degrees of chronic illness due to cancer, Lupus and fibromyalgia coupled with the traumatic loss of my brother nearly six weeks ago, I am seeking to be sane and able.

How many blows are too many? When does the day come when enough is enough? The sheer number of traumatic events that have hit my little family of four over the past 25 years have ranged far and wide, from serious injuries to 9/11 to near fatal illnesses to shocking deaths plus more. We are the people that others pity. 

Paradoxically, is it enough that I have my immediate loving family and friends? Is it enough that I am free of major worry about finances and can sit in two modest, comfy places that I call home where at one I roam the beach and at the other I can light a fire, gaze freely at the majestic Hudson River, and do nothing? 

Is it enough that I've been married to the same man for almost 30 years and we've settled into a comfortable albeit routine pattern of living? Is it enough that I have food to eat, clothes to wear, a car to drive, a bed to sleep in and grown children who still want to talk and be with me? 

I must answer "yes" and continually remind myself I am very, very  blessed. So why is it so hard.?

You see, I'm not an "enough" sort of gal, however, and this land is foreign to me. I'm a goal-setter and charting a revised course one more time isn't easy. Recently, my husband and I both joined a suicide survivors support group and went to our first meeting last week. Since both our brothers took their own lives (two years apart), we think it will be helpful. Maybe we'll go back. 

So, I guess its enough that I can still kick myself in the butt to to live regardless of the pain; regardless of the shame; regardless of the guilt; regardless of the grief. I find the nights are the hardest. This is when my nerves jangle and my head aches and my sorrow feels like knife blades. I can't settle down to sleep. I wonder what's next. I pray. 

I know I am clinically depressed. I've been here before, albeit a long time ago when it was also tied to tremendous grief. And I am getting help and taking things one step at a time. After being on such a high with the launch and great reviews of my book, I find myself completely upside down; swirling in a vortex and weighted down with worry and pain. 

I know. It does get better. As the sayings go: Time heals all wounds. God only gives you as much as you can handle. This too shall pass. When God closes one door he opens another, etc. etc. Those of you who follow my blog or who have read my book are aware of my internal guidepost - my Statue. It's a cement figure of a human that I envision when I need to 'take my temperature' - understand how I am feeling. Today, my Statue is in medium-sized pieces all over the ground. That's better than crumbled or dust. I'll take it - for now. 

There is no point to this blog other than to say I'm still trying my best and following my own advice about taking charge of your own health and well-being. Perhaps if I try through my tears, you will, too. And I will gladly accept any words of encouragement through comments on this blog or to ascrohn@gmail.com.

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NOTE: As is typical, we find that my brother is receiving fame in death that he should have had in life. Stories have already been written in The New York Times, The Los Angeles Times, NPR and various other newspapers around the country. I have also been contacted by New York Magazine that will be compiling a feature about his interesting, varied, and fully-lived life as well as The Lancet for the contributions he made to medical research. My own book takes a back seat for now as I tend to the business of honoring my brother's legacy. 

FIGHTING TO LIVE: When does the pain become too much?

I often write about pain, both physical and emotional. Those of us who have survived life-changing traumatic events or suffer from chronic illness (or both) endure our fair share of pain.

But when does pain reach a level that is beyond our endurance? When do we know?

My dear brother, Stephen Lyon Crohn, knew and now it is public. As reported in the The New York Times, he took his own life. "The Man Who Couldn't Catch AIDS" was still susceptible to a lot of everyday things that cause searing pain. Of course the story has gone viral and, not surprisingly, the 'haters' (as my son calls them) are leaving comments of questionable taste and accuracy. It is taking quite a bit of strength for me not to register and sign in to all these 'news' and other sites and leave comments of my own. But I won't take the bait.

How my brother died is vastly less important to me than how he lived. His sheer love of life during the 66 years he was here with us was the wonderfully contagious thing about him. You can see it in his art. You can read it in his words. You could feel it in his 'snuggle hugs' as one of his friends described them. This world is, indeed, a better, more beautiful place because he was here.

Living With Pain

But I want to know how we continue to fight to live with our tragedies and traumas and the hurts that accompany them? How do we choose life day after day? Simply put, there is no easy answer.

In a September 2011 article in Psychology Today, Shawn T. Smith, Psy.D. explains:

"There is a certain kind of thinking that fuels suicide, and for most of us it is a terribly difficult idea to sit with: suicide is problem-solving behavior. In the mind of someone considering suicide, the act may seem like an expeditious and effective way to eliminate pain."

My brother was an extremely logical thinker. He was that 'problem-solver.' And while his logic in the case of deciding to take his life, may have been flawed, it led him to a conclusion that felt right for him.

Smith continues:

"The thought of suicide most often occurs when a person feels they have run out of solutions to problems that seem inescapable, intolerably painful, and never-ending."

We all have problems that seem insurmountable at times. My brother was no different. To respect his eternal privacy, I will not outline the WHYS and HOWS of his final act. Many are asking (rudely) and he left some answers; but they are not for me to reveal. It is my job to help my family and I heal. 

There are a number of resources for people who are thinking of suicide: Hotlines, websites, support groups and each begin with CALL SOMEONE or 911. Of course, we ask why my brother did not make that one last phone call. Why didn't he reach out before... But we've learned he had his reasons. We have to accept his choice. Enough said. 

Now, though, we find we are the sufferers. According to supportaftersuicide.org:

"Many people bereaved by suicide feel alone and isolated. The silence that surrounds the issue of suicide can complicate the experience. Because of the social stigma surrounding suicide, people feel the pain of the loss, yet may not believe they are allowed to express it."

Ayup. It's just awful. I visit his website daily - Crohn Studio - and I check his Facebook page for new messages that might make me breathe more easily, ease the lump in my throat and close the hole in my heart. My sister and I decided to create a Facebook memorial page soon. In the meantime, we field phone calls from reporters and friends, colleagues and admirers, family and old school chums from grade school. He certainly left an indelible mark.

Irreconcilable Differences 

I would be lying if I said it wasn't difficult for me to reconcile how I fought to live, died to live, and still take one step in front of the other every day with painful, frustrating remnants of cancer treatment, Lupus and chronic illness. My brother stopped stepping up the stairs. I have to remember that it was his choice; maybe not my choice, but a choice nonetheless.

Looking for quotes on living and treasuring life, I found some inspiration in words attributed to George Washington Carver, a former slave who became a celebrated inventor, botanist and chemist until a tragic fall down the stairs led to his death at age 78.

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in your life, you will have been all of these."

My brother was all of these. I guess the last person he could be tender with was himself. Or was he? 

Part of Carver's epitaph could be my brother's own:

"HE COULD HAVE ADDED FORTUNE TO FAME BUT CARING FOR NEITHER, HE FOUND HAPPINESS AND HONOR IN BEING HELPFUL TO THE WORLD"

This is how I will remember him. This is how I will honor him. This is how I will choose to go on.

Gravestone of George Washington Carver