About Amy Susan Crohn

Amy Susan Crohn

When all the little girls in first grade said they wanted to grow up to be nurses or teachers, I always said I wanted to be a writer. Stubborn as I was, I made my dream come true by never giving up, regardless of family circumstances, no college education, and a fierce survival instinct to become an adult "despite" my parents' lack of parenting. 

I've worked in journalism, public relations, marketing communications, and even taught a college course. I am also the great niece of Burrill B. Crohn, the famous Mt. Sinai Hospital fixture who discovered Crohn's Disease. It is no wonder that illness wound it's way through my entire life - some sort of infamy, I guess. I am married (28 years)and have two sons.

Dying to Live: Synopsis

At age 36, Amy Susan Crohn was diagnosed with Stage IV cancer and Lupus, a dual diagnosis that was considered terminal. After her first highly invasive biopsy surgery, she was pronounced dead and revived with an emergency tracheotomy. The next three years were a cauldron of chronic care, surgeries, chemotherapy, rehabilitation, and her terrific fight to ensure that her husband and two young sons would not be left to bury her.

Moreover, Amy learned about national and international studies that link childhood maltreatment with adult physical illness. Amy’s own childhood, as the descendant of a famous doctor herself, was fraught with dysfunction that led her to suppress the distress of the first 18 years of her life that finally exploded as a cancerous tumor wedged between her heart and lung and an autoimmune disease that caused critical issues with her treatment. This made her somewhat of a medical celebrity in the connecting circles of the New York City area hospitals where she was treated.

Experiencing challenges that she never thought she could face, Amy survived to tell her story to help others who face any adversity that devastates the mind, body and family. She is cautious yet inspiring when she describes her experience on the other side during her near-death and realizes that there are many “professional patients” who struggle daily with chronic side effects from cancer treatment. Coupled with other disorders, particularly of the autoimmune kind, she also delves into the psychological aspects of dealing every day with emotions that range from fear to elation and measuring life in moments.

An accomplished writer, this is Amy’s first introduction to the public with a strong message in a memoir that will resonate with survivors of any catastrophic illness as well as those who feel they must hide their chronic disabilities to continue to work and tend to their families.

How I got into Advertising

My father took this photo of me to illustrate a poor, hungry child in a fundraising campaign. I was two and my mother snatched my favorite Teddy bear away. I never knew who the other child was.


  1. maggie.danhakl@healthline.comJanuary 14, 2014 at 12:52 AM

    Hi Amy,

    I hope all is well with you. I represent Healthline, a medical website providing trustworthy health news and advice. This year, one of our goals is raising awareness about Lupus.

    We recently created a virtual guide of the symptoms of Lupus and how it affects the body. You can see the diagram here: http://www.healthline.com/health/lupus/effects-on-body

    I am writing to ask if you would help us raise awareness about the disease by including our tool as a resource on your page: http://dyingtoliveamy.blogspot.com/

    Please let me know if this would be possible and if you have any questions.

    Thanks again and best wishes in 2014.

    Warm regards,
    Maggie Danhakl • Assistant Marketing Manager
    p: 415-281-3124 f: 415-281-3199
    Healthline • The Power of Intelligent Health
    660 Third Street, San Francisco, CA 94107

  2. Hey Amy! My name is Cameron Von St. James and I had a quick question for you & was wondering if you could please email me when you have a free moment. Thanks! I really hope to hear from you soon and appreciate you taking the time. ☺ cvonstjames AT gmail DOT com


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